Segway Scooter as an Assistive Device

A group called DRAFT (Disabililty Rights Advocates for Technology) distributes Segway scooters through its Segs4Vets program, matching Segways with veterans with a wide variety of disabilities. Segway scooters have a very small ‘footprint’, with a turning radius that is much smaller than that of a power chair. For most users they represent a less-fatiguing, more versatile means of ‘walking’ — as well as one that accommodates a wide variety of terrain.

Best of all, say users, a Segway, unlike a wheelchair, allows face-to-face interaction.

Sounds like a great, feel-good post doesn’t it? Maybe — but it turns out that the obstacles these vets face aren’t the ones you’d expect. Because Segways go much faster than a power chair and appear to represent a greater threat to pedestrians, many cities (liberal, people-loving San Francisco, among them) have banned them. So have other venues: Disney World and at least one Barnes and Noble store in Arizona, among them.

Disney’s argument seems to be that the scooters haven’t been certified as ADA assistive devices; it’s unclear how retailer objections will play out. A Segway disability-use permit — like the parking placards issued by every state — would seem to be a simple, logical solution to the question of identifying scooter drivers with a disability, but hey, I’m only thinking logically here. While the world sorts this out, riders might want to pack a doctor’s note and see if some courteous information exchange can get them to that latte.

Segways aren’s for everyone with a disability. Though they can be modified in various ways, their use depends on considerable motor skills, along with a dose of good judgment. (Speed is increased or decreased by leaning forward or back; forgetting this can have serious consequences.) Those who use them particularly cite the advantages of being able to travel upright for longer periods of time, and the ease of getting where power chairs just don’t like to go. There’s a certain cool factor, too. Unlike a power chair, they’re likely to inspire some admiring glances; this assistive device is coveted by people without disabilities, as well.

Segway image from Flickr

Comments

Strain-Relieving Handle for Rollling Suitcases and Bags

If you’re attempting to fly with American Airlines this week, there’s probably nothing in the world that can make the experience better. In the future, though, if you find yourself traversing airports with bags in tow, this device might be your best companion, particularly if you have wrist or hand pain that is aggravated by the handles on rolling bags.

There are quite a few similar handles available, but this is the one I use. Here’s why: the grabber rotates 360 degrees. That means that I can always keep my hand where it’s most comfortable; it makes pulling my bags easy and pain-free.

Someone was really thinking when the attachment was designed, too: the hook and loop fasteners are on both sides of the bar that attaches to your bag handle. That keeps the TravelTow handle firmly in place, but allow you to rotate where you want it.

I use mine nearly everyday; one is attached to my rolling shopping basket. It works perfectly on my rolling computer case, too, as well as on suitcases.

TravelTow Handle Adapter by Lewis N. Clark; available at travel gear stores and various places online.

Comments

Wheelchair Canopy for Sun or Rain

shade.jpgSpring rain is falling with a vengeance in many parts of the country, and soon we’ll be contending with the sun of summer. If you use a scooter or wheelchair outdoors frequently, you may be interested in these canopies sold by Diestco. There are three models: one that’s all solid fabric; one that has mesh on the sides and rear; and a third one, just like the second, but with drop-down plastic curtains. (Each available in five colors, for the fashionistas among us.)

Initial installation takes about 20 minutes, according to the website. Mounting methods for several common wheelchair styles are shown, but if your scooter or chair differs, Diestco invites you to describe your needs when you order.

Diestco also offers a variety of armrest bags that look thoughtfully designed, and cupholders for scooters, power, and manual chairs, along with many other accessories.

Comments

Disaboom, Take Two

In response to several thoughtful comments by readers about my earlier Disaboom post, I revisited Disaboom recently. Here are my impressions.

Short version: I still don’t like it, for most of the reasons previously stated, and some new ones. Details follow.

I absolutely agree with the commenters who ask “What’s wrong with a site making a profit?” I agree, nothing at all is wrong with making a profit, as long as the owners are upfront about it. Disaboom is. Likewise, I see nothing wrong with a social networking site that observes its own privacy policy, and shares individual information and access only when explicitly permitted to. Disaboom users I’ve heard from say that Disaboom does just that. That’s good.

(Disaboom, at least as of this date, is not making a profit, though. See below.)

But there is a host of other things that still, and newly, bother me about Disaboom. I found the medical information available to be lightweight, poorly edited, and poorly presented. For example, under Conditions: Muscular Dystrophy: Introduction, two paragraphs appear. They’re a slapdash intro to the disease, followed by these lines:

The specifics of these diseases are outside the scope of this discussion, but readers are encouraged to look at the links listed below for further information.

Well, pretty much everything about muscular dystrophy is “outside the scope” of this “discussion”, especially since there are no links below to follow. That’s careless editing, of course, but typical of the general approach to the content. There’s no justification, need, or even any point to having these unsatisfying articles on Disaboom: Type “muscular dystrophy” into your browser’s search box, and you’ll instantly find thousands of articles with more, and more useful, information that you’ll get on Disaboom. Or take the mainstream approach and just go to WebMD, where you’ll find a slew of information well- presented and easily accessed.

Disaboom’s “lifestyle” articles seem equally pointless to me. Consider, for instance, this article: Successfully Support Your Significant Other’s Fitness Goals. Pick up any women’s magazine at your local supermarket, and you’ll find a similar article. Curiously, there’s nothing whatever in the content that is remotely disability-related. What’s the point of putting it on Disaboom? It’s not new art; it has nothing to do with the specific issues of Disaboom’s target market; it isn’t particularly informative. (How do you support your significant other? News flash — be nice.)

Then there’s this article on being a “football widow”. This post does happen to feature people who are living with SCI, but, once again, this advice is straight out of every women’s magazine ever printed. The featured issue, and advice, have nothing at all to do with SCI or living with any other disability. These articles are just slapped-together filler for a site that has little content-commitment to its putative target audience.

Even when there’s a nod to disability issues, it’s often feeble. Consider, for example, this article called 10 Tips for a Romantic, Accessible Valentine’s Date. The author suggests that you phone ahead to make sure your restaurant is accessible — that’s the extent of the relevant “tips”. Otherwise, it’s all suggestions for activities that are in no way disability-specific. If you have a disability that requires it, and you’ve been to even one restaurant since you began living with your disability, you’ve probably already learned to call ahead. You don’t need a lame article on a website to remind you.

What’s the harm, you say? Think I’m being kind of hard-nosed here? Maybe, but articles like these, which are content-poor, but pretend to address the specific needs of a defined population (but don’t) seem cynical to me. Nobody needs to come to a “disability” site for relationship advice that anyone can follow. Implying, by providing content like this, that the human needs all people share can only be met for people with disabilities on a site specific to that sub-group, is mightily offensive to me. Having a disability usually implies a need for some specialized knowledge; it doesn’t remove anyone from the pool of all humans who populate the world.

Perhaps a more serious objection to Disaboom has to do with questionable content that looks a whole lot like blatant public relations blurbs. There’s nothing dishonest about making a profit, but passing off what are essentially advertisements as editorial content is at least a little sleazy. Here’s one article that looks like it’s straight from the Chicago Chamber of Commerce. Or this one, from Scottsdale, Arizona. I believe that “articles” like these should be identified as exactly what they are: ads.

Ads, and PR releases, aren’t particularly useful in and of themselves. Commercial content that isn’t edited, vetted, or critiqued isn’t particularly useful. They’re just enticements or promises. Shouldn’t a site dedicated to the needs and desires of a population living with disabilities do more than reprint uncredited ads? I think so. Otherwise, what’s the point? You can type “Chicago disability travel” and get a whole bunch more information on your own browser in seconds than you’ll get in Disaboom’s PR reprint. Why on earth would you limit yourself to the information on one, self-serving, website? I wouldn’t.

Moving on to a genuinely disability-related topic, Disaboom’s “Consumer Guide to Adaptive Vehicles” isn’t a legitimate “consumer guide” at all. And, surprise, surprise, it’s also self-serving — in this case, the “self” is the National Mobility Equipment Dealers Assn.. Need an adaptive vehicle? Here’s what you should do:

The first step is contacting a dealer or retailer in your area who is knowledgeable about evaluating both your physical needs and the best adaptive technology solutions for your individual circumstances.

When I required adaptive equipment for a vehicle (and later, when I required an adaptive vehicle), the first thing I discovered is that the dealers were the worst place to go. They knew how to sell, but next to nothing about individual needs or options. I was able to get what I needed only by thoroughly educating myself, and then returning to the dealer and ordering exactly what I specified. That’s the consumer advice I’d give everyone. Dealers exist to push what they’ve got to sell, not necessarily to find or provide what you need. This advice from Disaboom is essentially useless; you might as well be reading an ad. Which, of course, is exactly what you are doing.

And then there’s Disaboom’s “Jobs” section. If you believe that Disaboom has, as they claim, a “list of over 500,000 jobs” for people with disabilities, I have a bridge I’d like to sell you. I didn’t sign up, so I don’t know which job site they’ve affiliated with, but it certainly isn’t their own, and your individual chances of finding meaningful, full-time work won’t be any better because you’ve signed up on Disaboom database than it will be on Monster or any other job site.

Disaboom wants you to sign up to bolster their numbers, but they’ve got nothing special to offer you, and it’s dishonest of the site to pretend it does. Claiming that there are “over 500,000 jobs” under the disability umbrella is highly misleading; these are the same 500,000 jobs for which everyone is competing.

The generic information Disaboom provides about employment looks like a poor re-hash of readily available government information. Why not get it directly from the source?

Those are (still) my beefs. Disaboom’s ability to succeed is very much tied into the idea that a huge proportion of people with disabilities will look to Disaboom, and only Disaboom, for information, advice and social contacts. There’s simply no reason for any sensible person to limit him- or her- self to only one “disability” site as an information resource. As for social networking, it’s fabulous for the users, but it’s just another internet bubble that will burst for investors — if it ever manages to reach the point of having any economic value in the first place.

This is an expensive website with little original or novel content. According to the most recent SEC filings, Disaboom still isn’t making any money; it still looks like a tanker to me. Investors, save your pennies. Social users, have at it: You’re at no risk at all, unless you’d really like to know where editorial content ends and ads begin. Enjoy it while you can; I’m still guessing that Disaboom is going to be a black hole for its investors. From my point of view, Disaboom is trying to fill a need that doesn’t exist, and is doing so not-very-honorably.

Comments

Small, Inexpensive Camcorder for Sharing Experiences

flip.jpgIf you have a loved one who won’t be able to be with you for part of your holiday celebrations, you may want to rush out and find a Flip video camera. The Flip is a very cool piece of gear; it’s about the size of a rectangular cell phone and it’s incredibly easy to use — basically point and shoot.

But that’s not the best reason to get it. If you want to share holiday joy (or any other experience) easily and quickly, this little critter is your best friend. The Flip comes with an audio-video cable that plugs the camera directly into your television. Hit the play button, and there’s your video where everyone can see it. How easy is that?

At around $99-130 (USD) for the standard model (1 GB of memory), and $120-150 (USD) for the Ultra (2 GB) this camcorder is cheaper than many digital cameras. No, it won’t make cinema-quality video, but it does make terrific memory videos. It’s so small that you’ll never be tempted to leave it at home, and it’s so easy to use that there’s just no excuse not to film away.

If you’re filming for someone like my dad, who’s in a nursing home and finding it increasingly difficult to focus on details, you’ll want to remember to frame people and objects so that they can be identified easily.

After the holidays, we’ll be using ours to snap everyday things that may interest Dad — this would include dogs we encounter, our bad cats at play, odd or vintage motor vehicles, and stuff we see on local outings.

If you’ve got a youngster who may be participating in the holidays from a couch, bed, or chair, you might consider putting him or her in charge of recording the festivities. Judging from reviews on Amazon, kids as young as four can use the Flip, though I’d expect that eight and up is generally more realistic, at least for semi-independent use.

Recording time is 60 minutes; built-in software accommodates Windows and Macs, lets you upload films to YouTube and other sites, and capture frames for still photos. Reviews make it clear that if you’re serious about editing, you’ll need to buy separate software just for that. But that’s getting technical — here at GA, we’re more interested in the social side of things.

Flip is powered by 2 double A batteries; ours came with two cases and a wrist strap. I’ve seen them at Sam’s Club and Costco (though I see Costco doesn’t have it online today). Sam’s sells it only in the stores, not online. Amazon has them in stock, but you won’t take delivery by the 24th. Don’t let that stop you; there’s a whole new year ahead!

Comments

First Partial Face Transplant - 2 Year Follow-Up

isdin6.jpegIn November 2005, Isabelle Dinoire, a 38-year-old woman whose face was mauled by her dog, received an historic face transplant at the Centre Hospitalier Universitaire d’Amiens in France. Two years later, her doctors have published a follow-up study of her case in the New England Journal of Medicine.

According to the NEJM article, Mlle. Dinoire “the patient is very satisfied with the results of the transplant”. She is able to eat, drink, and speak normally; it is said that, with make-up, her surgical scars are no longer evident. The results do appear to be remarkable:

isdintriple.jpeg

The picture on the left is NOT a post-transplant image; it’s from 2001, four years before the face transplant, when Mlle. Dinoire was 34 years old. The middle picture is from November, 2006, one year post-transplant. The right picture is of Mlle. Dinoire in June, 2007, eighteen months post-transplant, showing her natural face, without make-up.

isdin-chart.jpegThe post-surgical journey has been difficult. Mlle. Dinoire has suffered several bouts of rejection and one of kidney failure. She has battled infections; she must, of course, take immune-suppresents for the rest of her life. The return of functional abilities has exceeded expectations, though. This chart (left), from the New England Journal of Medicine, tracks the changes throughout the first six months; her abilities now far exceed those noted here.

isdinpostop.jpegMlle. Dinoire’s case is controversial for many reasons. One of her doctors initially reported that she had attempted suicide; Mlle. Dinoire herself confirmed this in an interview with a London newspaper. Her injuries occurred when her dog was trying to rouse her from unconsciousness following the drug overdose. (Her donor did commit suicide, adding another layer of emotional complexity to the case.)

Mlle. Dinoire, a single mother, has a history of depression, and had been unemployed for a year prior to the incident. Criticism has been leveled at her doctors, who, some feel, may have chosen a particularly vulnerable patient for this historic operation.

Long-term, the physical problems alone may prove overwhelming. Notes The Washington Post:

Maria Siemionow, director of plastic surgery research and training at the Cleveland Clinic, which has been planning to do face transplants, expressed concern about Dinoire’s “unexpectedly aggressive immune response.” Scientists need better ways to prevent rejection of large, complex tissues such as faces, she said.

Siemionow, along with others, also expresses concern about the psychological implications; no psychological study has been published in connection with Mlle. Dinoire’s treatment.

isdin-doc.jpgBritish filmmaker Michael Hughes has made a documentary of the surgery; Mlle. Dinoire allegedly signed a deal for movie rights to her story earlier this year, netting (according to one account) over $400,000 (USD). The Hughes documentary is reviewed here (in French).

Whether Mlle. Dinoire’s pioneering venture will prove worthwhile over time remains to be seen. The potential scope of this experiment is breathtaking, yet it cannot help but recall the innocence and irony of Miranda’s words in Shakespeare’s Tempest:

O brave new world
That has such people in’t!

Related:

The Tin Noses Shop

The Origins of Plastic Surgery

Comments

Car Battery Disconnect Switch for Drivers with Dementia

batswitch.gifIn the United States, there is probably no greater rite of passage into adulthood, and the independence it represents, than acquiring a driver’s license. Losing that privilege through disability can be incredibly devastating. When Alzheimer’s or other dementias are involved, explaining why driving is no longer safe may not be sufficient to keep a loved one off the road.

One non-confrontational solution is this battery disconnect switch. It’s easy to install on the battery terminal; turning the knob disconnects the battery, making it impossible to start the car. When the car must be driven, the knob is screwed back down, and the battery functions again.

It’s much easier, emotionally, to accept that the car just isn’t working today than it is to accept that a lifetime of independence is gone. A mechanical solution like this may minimize conflicts, while, at the same time, keeping the roads safer for everyone.

“No Start” Car Battery Disconnect Switch, $19.95 (USD) at The Alzheimer’s Store

Comments

Calendar with Date Marker

call-tag.jpgDistinguishing one day from another is one of the difficulties of living in a nursing home. Sometimes it’s also an issue for people who don’t observe a routine outside of their usual living space.

Knowing what the day and date are and anticipating activities and holidays are important tools for keeping mental skills in good shape.

I was pleased to find this calendar last year for my dad. The daily squares are large enough so that I can note activities in large letters; my dad can easily read the calendar from his wheelchair.

This calendar also has an uncommon feature: a date marker. This is a red rectangle that slides on a transparent strip of plastic. The plastic band wraps around the calendar; you move the rectangle each day to the correct date. If Dad doesn’t remember what activities are on today’s schedule — or if he’s confused about what day it is — the rectangle cues him.

The only drawback is that it’s boring! We solved that in Dad’s room by hanging three different calendars (all showing Golden Retrievers, of course) next to this calendar. They’re folded so that only the glossy photos of dogs show.

On the first of the month when I change the page of the large calendar, I also flip the canine calendar pages, revealing three new dogs-of-the-month. Practicality and glamor; you can’t beat the combination!

I found this calendar in an office supply store last year, but haven’t seen it this year. It’s called AT-A-Glance Wall Calendar with Additional Features, and I found it online at mead.com.

Members of the DIY crowd could probably find a number of ways to implement a similar date marker on almost any wall calendar by making a bright cardboard rectangle and cutting a clear plastic strip from holiday packaging.

Comments

Accessory Bags for Wheelchairs, Walkers, Scooters and More

Managing the ‘things’ of everyday life is complicated if a wheelchair, walker, crutches or the like are also part of life. Where do you put the stuff you want, or like, to have with you as you during the day? I’ve seen a lot of bags that are theoretically mobility equipment friendly; most are poor adaptations of ordinary bags and neither well designed nor well made.

These accessories, from Adaptable Designs, are different. They seem to have been made by people who really understand how they’ll be used. Here’s a sampling of what Adaptable has to offer.

sidepouch.gif The “Sidekick Wheelchair Pouch” is meant to attach just below the seat of a manual wheelchair, on the inside of a manual wheelchair armrest, or on the outside of a power chair armrest. One pocket is fleece lined for glasses; there’s an open bellows pocket for bulkier items, and a zippered pocket for smaller items or for privacy. The zipper has a ring pull for easier use.

pouch.gifAdaptable’s “Versa Crutch Pack” would make even a six-weeks’ tour with crutches much more pleasant. If you’ve ever tried to handle a purse, a cell phone or a planner while swinging through life on crutches, you’ll see the utility of this bag. According to the website, this pouch’s

roomy main zippered compartment fits wallet, checkbook, comb/brush, medicine, etc. — even an occasional sandwich.

This one’s for standard crutches, forearm crutches, some power chairs and some scooters. In a typical thoughtful Adaptive Designs touch, there’s a strap to stabilize the pouch, so it doesn’t develop a rhythm of its own while you’re moving.

armorg.gifIf a backpack is overkill, and something like the Sidekick Pouch isn’t quite big enough, the “Just Right! Organizer” might be perfect. Like the bags above, it uses hook and loop straps to attach to

the inside armrest of manual wheelchairs; the inside or outside of scooter and power chair armrest; scooter tillers; [and] bedrails.

Whew. Here’s a partial description:

Fold-over zippered flap pocket is an ideal place for keeping checkbook, wallet and other valuables. Ring-type zipper pull is particularly helpful for those with limited hand dexterity. Keep the flap out to “hide” the contents of the outer bellowed pockets. Tuck the flap inside the main compartment if open access if preferred — the zippered pocket is still easily accessible.

There’s much more! Adaptable’s website is particularly user-friendly; you’ll find lots of information about which kind of equipment works best with which accessory, and specific size information, too.

Related:

DIY - Covers and Pouches for Mobility Aids

DIY - A Simple Cupholder for a Wheelchair

Pockets for a Wheelchair

Comments

DIY - Laptop Desk for Chair or Bed

ben-desk.jpgI’ve never liked chairs much, and work at my desk only when there’s no other option. My preferred writing mode is in, or on, a bed or couch, stretched out with my laptop in front of me. For a long time, I used a Targus laptop desk that I originally bought for travel. I like it very much, but I don’t much like having the weight of the laptop on my thighs for hours at a time.

Eventually I ran across IKEA Hacker, and discovered this mod of IKEA’s Benjamin stool. If you compute in bed or in a chair by necessity or by choice, this portable desk might enhance the experience. It’s been a great solution for me.

It took me just about 40 minutes to turn this $20 purchase into a terrific laptop desk. I use it every day, and it’s a pleasure every time. Mr. Smiley, on Hacker, used a $6 coping saw to do the cuts; I used my $6 hacksaw.

My version is a little taller than the one shown on Hacker; I had to trim the stool’s legs twice to get the height exactly where I wanted it, and the angle just right. (It’s smart to leave the stool too tall at first, if you’re not sure you’ve got the height calculated perfectly.)

Of course, this laptop desk isn’t adjustable once you’ve made it, but if $140 for a Laptop Laidback is a bit much, this could be a fine compromise.

I cut a piece of gripping mesh to fit between the laptop and the desk, which keeps the computer from sliding around. My laptop stays nice and cool, and so do I, since its underside isn’t in contact with my body. The desk’s relatively high clearance means that my lap and legs don’t feel cramped and don’t get numb when I work for hours, and if I sit up properly, the keyboard is at a perfect ergonomic angle. That’s good for my wrists and hands, too.

If you scroll down on the IKEA Hacker page, you’ll see a few more amusing variations on this theme, though nothing as useful as this particular “hack”.

Comment